A project that could revolutionise care for Parkinson鈥檚 patients and staff has been launched at a national event.
Entitled 'Developing Home-based Parkinson's Care', and led by the 精品无码国产自产 and University Hospitals 精品无码国产自产 NHS Trust (UHPNT), the project will focus on co-designing a new service to help Parkinson鈥檚 patients, carers and healthcare staff monitor a person鈥檚 condition remotely 鈥 ensuring care remains person-centred, while improving wellbeing of healthcare staff.
The launch took place on Tuesday 23 July at Future Inn in 精品无码国产自产, following the recent announcement of 拢75,000 funding from The Health Foundation and 拢15,500 from a Parkinson鈥檚 UK Excellence Network Service Improvement Grant.
Project partners include Cure Parkinson鈥檚 Trust, Flourish Workplace, Sheffield Hallam University, Global Kinetics Corporation, Parkinson鈥檚 UK, Fre-est, Radboud University, the South West Academic Health Science Network (SWAHSN) and UCB Pharma 鈥 along with people with Parkinson鈥檚 and their carers.
Why is the work necessary?
Current guidelines from the National Institute from Health and Care Excellence suggest that people with Parkinson鈥檚 should receive specialist review at least every six months, usually provided by a consultant and community Parkinson鈥檚 disease nurse specialist (PDNS). But a recent audit of patient experience, conducted by the project team, found that 46% have consultant appointments delayed by more than six months, and 60% have not seen the community nurse within the last year. Some regions of the UK don鈥檛 have the specialist service, and 50% of vacant PDNS posts are due to long-term sick leave or resignation.
